Centre for Rare Lung Diseases at Heidelberg University Hospital
        
    Description of facility
Director / Spokesperson
Professor Dr. med. Felix Herth, Dr. med. Markus PolkeInformation
Care facility for adultsDescription
As a partner in the German Centre for Lung Research (DZL), the Thorax Hospital is integrated into the inter-site collaboration in the field of basic sciences and clinical research. The Thorax Foundation Heidelberg, founded in 2015, specifically supports projects in science, research and patient care and prevention, especially in relation to diseases of the thoracic organs.
If you are a patient or relative interested in a diagnosis, therapy or second opinion at the clinic, please contact the outpatient clinic or ask your doctor.
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Consultation hours
nach Vereinbarung.
Care provisions
This facility offers the following
- 
                        Participation in registries
 
- Genetic counselling
- 
                        Clinical studies / research
 The aim of patient-oriented research is to continuously improve the diagnosis and therapy of rare lung diseases. There is close cooperation with research groups within the university hospital as well as external institutions. The clinic conducts numerous scientific projects and clinical studies. Focal points are:
 All forms of interstitial lung diseases, cystic fibrosis, pulmonary hypertension, complex endoscopic interventions in lung diseases, alpha-1 antitrypsin deficiency, obstructive airway diseases (especially severe asthma), smoking cessation.
- Diagnostic
- Therapy
- 
                        Contact person for patients with an unclear diagnosis
 Coordinator of the Centre, Dr. Okun (06221-564503, seltene.erkrankungen@med.uni-heidelberg.de); office hours by telephone: Mon - Fri 9:00 - 11:00, Tue and Thu 14:00 - 16:00.
- 
                        Contact with support groups
 - Lungenfibrose e.V. www.lungenfibrose.de
- LAM Selbsthilfe Deutschland e.V. www.lam-info.de
- Deutsche Sarkoidose-Vereinigung e.V. www.sarkoidose.de
- Pulmonale Hypertonie e.V. www.phev.de
- Scleroderma Liga e.V. www.scleroliga.de/de/
 
Contact
            
             ILD-Nurse
            
             06221 3968219
            
            
            marianne.seiter@med.uni-heidelberg.de
            
            
             Website
        https://www.klinikum.uni-heidelberg.de/interdisziplinaere-zentren/zentrum-fuer-seltene-erkrankungen/fachzentren
        
        
Languages
            
            
            
            
             Deutsch
 Deutsch
            
             Englisch
 Englisch
            
            
            
    
European Reference Network 1
Preview of the assigned diseases 8
Provided care options 4
| # | Contact person | 
|---|---|
| 1 | Ambulanz für Alpha-1-Antitrypsin-MangelPD Dr. med. Franziska Trudzinski
                                    
                                        
                                            06221 3968000
                                        
                                    
                                    
                                    
                                         | 
| 2 | Ambulanz für Interstitielle LungenerkrankungenSekretariat
                                    
                                        
                                            06221 3968000
                                        
                                    
                                    
                                    
                                         | 
| 3 | Ambulanz für Lungenhochdruck - Pulmonale HypertonieProf. Dr. med. Ekkehard Grünig
                                    
                                        
                                            06221 3961288
                                        
                                    
                                    
                                    
                                         | 
| 4 | Ambulanz für SarkoidoseDr. med. Markus Polke, Prof. Dr. med. Hanns-Martin Lorenz
                                    
                                        
                                            06221 3968000
                                        
                                    
                                    
                                    
                                         | 
